Sunday, July 13, 2025

Conference Registration & Help Desk Open

8:00 AM - 3:00 PM - Hotel Lobby

Exhibit Fair Open
8:00 AM - 3:00 PM - Main Hallway

Dysautonomia Rehab Intensive for Physical Therapists, Occupational Therapists, and other Rehabilitation Professionals
This course for medical professionals requires a separate registration from the main conference. If you have a turquoise badge lanyard you are registered for this course. If you have a white badge lanyard, please stop at the registration desk if you would like to add this course to your registration.
View the Dysautonomia Rehab Intensive Agenda.

8:00 AM - 3:00 PM​​ - Mendenhall Ballroom %

Dysautonomia in Hypermobile Children with Eosinophilic Esophagitis: A Distinct Phenotype
Joshua Wechsler, MD, Lurie Children's Hospital
8:30 AM - 9:10 AM - Chimney Rock Ballroom % @ #​

Discussion Panel: Post-Vaccine POTS and Autonomic Dysfunction – A Review of Recent Research and the Legal Landscape
Moderator: Lauren Stiles, JD, Dysautonomia International
Panelists: Brianne Dressen, REACT19 and Linda Simoni-Wastila, MSPH, PhD, University of Maryland School of Pharmacy
8:30 AM - 9:10 AM - Pinehurst Ballroom %

10 Minute Research Updates
9:20 AM - 10:00 AM - Chimney Rock Ballroom % @

One-Year Cardiovascular Outcomes in Children and Adults with POTS: A Real-World Multicenter Analysis
Ali Reza Rahmani, MD, Stony Brook University

Possible Genetic Markers for POTS
Jeffrey Boris, MD, Jeffrey R. Boris MD, LLC

Greater comorbidity is associated with more functional impairment and lower exercise engagement among adults with POTS
Elizabeth Walsh, PhD, Vanderbilt University​​​​​​

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Community Engagement Session: Developing New Treatment Guidelines for POTS
(bring your cell phone to vote during this interactive session)

Panelists: Brent Goodman, MD, Honor Health, Satish Raj, MD, MSCI, University of Calgary and Lauren Stiles, JD, Dysautonomia International
9:20 AM - 10:00 AM - Pinehurst Ballroom %
 

10 Minute Research Updates
10:10 AM - 10:50 AM - Chimney Rock Ballroom % @
REGN7544, a natriuretic peptide receptor 1–blocking monoclonal antibody, is a novel  

approach to increase blood pressure: Results of a first-in-human phase 1 study
Ethan Marin, MD, PhD, Regeneron Pharmaceuticals, Inc.

Characterizing Autonomic Dysfunction in Post-Treatment Lyme Disease
Brittany Adler, MD, Johns Hopkins University

Evaluation of Supracardiac Venous Angioplasty and Stenting on Orthostatic Intolerance and Orthostatic Hypotension – The STANDUP Study
Karthikeyan M. Arcot, MD, St. Francis Hospital and Heart Center

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Managing Comorbidities in POTS

Hasan Abdallah, MD, Johns Hopkins Medicine
10:10 AM - 10:50 AM - Pinehurst Ballroom %

Teen Program: Ask a Dysautonomia Doctor Anything!
Panelists: Jeff Boris, MD, Jeffrey R. Boris MD, LLC, Mohammed Numan, MD, University of Texas - Houston, Meeryo Choe, MD, University of California - Los Angeles
10:10 AM - 10:50 AM - Reynolds Ballroom

Mast Cells and the Autonomic Nervous System: Who is in charge here?

Onyinye I. Iweala, MD, PhD, University of North Carolina - Chapel Hill
11:00 AM - 11:40 AM - Chimney Rock Ballroom % @ #​

Community Engagement Session: Developing Patient-Centered POTS Clinical Trial Outcomes 
(bring your cell phone to vote during this interactive session)

Panelists: Robert Sheldon, MD, PhD, University of Calgary and Lauren Stiles, JD, Dysautonomia International

11:00 AM - 11:40 AM - Pinehurst Ballroom %

Teen Program: Nutrition Tips to Reduce Dysautonomia Symptoms
Gregory Plotnikoff, MD, MTS, FACP, Minnesota Personalized Medicine
11:00 AM - 11:40 AM - Reynolds Ballroom

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Lunch Break
11:40 - 12:40 PM - Complimentary boxed lunch available in the Main Hallway outside of the Chimney Rock Ballroom.

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Small or Large? Nerve Size Matters in Autonomic Disorders!
Kamal Chémali, MD, Case Western Reserve University
12:40 PM - 1:20 PM - Chimney Rock Ballroom % @ #​

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Diagnosis & Treatment of Sjogren's Disease: The Second Most Common Cause of Autonomic Neuropathy
Brit Adler, MD, Johns Hopkins University
12:40 PM - 1:20 PM - Pinehurst Ballroom %

Teen Program: Dysautonomia-Friendly Seated Yoga
Liza Fisher, Certified Yoga Instructor
12:40 PM - 1:20 PM - Reynolds Ballroom

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Discussion Panel: The Changing Face of hEDS - New Insights into Cause and Complexity
Panelists: Russell "Chip" Norris, PhD, Cortney Gensemer, PhD and Xiaolong Peng, PhD, Medical University of South Carolina
1:30 PM - 2:10 PM - Chimney Rock Ballroom % @ #​

How To Get the Most Out of Clinical Visits When You Have Dysautonomia
Sameh Mobarek, MD, FACC, University of North Carolina Health
1:30 PM - 2:10 PM - Pinehurst Ballroom %

Teen Program: Navigating Social Media as a Teen with Dysautonomia
Kristen Waldbieser, Dysautonomia International
1:30 PM - 2:10 PM - Reynolds Ballroom

Searching for the Root Cause: Biomarker Discovery in POTS and Long COVID
Tae Chung, MD, Johns Hopkins University

2:20 PM - 3:05 PM - Chimney Rock Ballroom % @ #​

Stories of Hope & Recovery
Liza Fisher, Zach Hungerford, and Amanda Miller, PhD
2:20 PM - 3:05 PM - Pinehurst Ballroom %

Teen Program: Stories of Hope & Recovery
Teens will go to the Pinehurst Ballroom from 2:20 PM - 3:05 PM.

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Q&A with the Experts and Closing Ceremony

3:05 PM - 4:00 PM - Chimney Rock Ballroom % @